Standing Up, For Yourself

I am standing in my store because it is physically too painful to sit. I have 5 herniated disks in my spine and one of my disks is pushing on a nerve that goes down from my butt to my right and left legs. The best way to describe the pain is, imagine the most painful charlie horse you’ve ever had, now imagine that no matter what you do it won’t stop cramping. This goes on for weeks and only gets worse. It’s a literal pain in the ass.

The pain is so bad that I can’t write any fiction. I can’t build worlds because the pain is all I can think about. I am falling behind in all of my duties because my leg constantly feels like it is being chainsawed off.  I go to doctors, they give me pills and stretches, and a recommendation for physical therapy.  I have had this back problem for 7 years. If pills and stretches were going to help I feel like they would have already.

My fiance and I went to see John Wick 2 this past weekend, I love Keanu Reeves, I’ve seen every movie he’s made and the John Wick series is by far my favorite. Sitting down for five minutes is absolute agony. That movie is around 2 hours long and the only way I could get through it was on a cocktail of muscle relaxers and pain killers.  I don’t want to be high all the time. I want to find a way to deal with the pain without medication. But at this point all of my doctors keep pushing medication at the problem and aren’t in any way concerned about fixing the issue. Like they say, there isn’t any money in a cure.

I’ve done injections, physical therapy, yoga, pilates, herbal remedies, acupuncture, and everything else under the sun and nothing helps. I was finally after years of being told I was too young reffered to a surgeon only to be pushed back into the physical therapy/ injections loop. It’s inferiating to be told what my body needs. I have no agency when I walk into the doctors office. I am told what I feel, how I feel it, and that I am basically being dramatic. Even though my X-Rays, MRI’s, and CT Scans say the problem is gradually getting worse and preventative measures are no longer working. But when I bring this up it is just me “not giving the system a chance”. The system has fucked me for my whole life. I have had to fight for every diagnosis, and every bit of mediocre care I have received.

But instead of you know, listening to me, the patient. I am stuck at 25 using mobility aids such as a cane and wheelchair, and in constant intense pain.  This last ER trip I was in the emergency room for 3 hours crying uncontrollably because of the pain. Only to be taken back and be told I should try losing weight ( I had lost 60 pounds prevoiously and immediately dislocated my spine, proving that the fat was possibly holding my back together. Like some kind of burrito fueled glue.) , I should try injections, this told me that the doctor didn’t read my chart but then began to treat me as if I was a drug addict. Like me wanting some kind of relief from the intense pain was a crime. I had to prove to him, in-between tearful gasps, that I  was an upstanding business owning citizen. To make him feel better about easing my pain. In what fucking world does a patient have to convince a “doctor” to do their damn job.

This is my life.

I now I have to schedule an appointment with my primary to be able to convince him to refer me to a neurosurgeon. I don’t understand why I have to negotiate with medical professionals to get help so I can live my life without being in an insane amount of pain. It’s absolutely ridiculous and completely exhausting.

 

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1 Comment

  1. I have no words for your pain except that I’m sorry that the medical professionals you’ve come in contact with are assholes and hold degrees for nothing. I’m sorry that a young woman as yourself have and are still suffering to no relief. It’s a crime to your humanity. I will continue to keep you and your family in my prayers.
    Michelle Rainey

    Like

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